This is scary. My wife and I (but mostly her) have been taking care of a family member with pretty severe early Parkinson's. It's been really scary. What's more, she had an auto-immune disease a dozen-ish years ago that she's still dealing with the effects of. There's so much to be afraid of. I hope you can find some pain remedy that 1) works and 2) you're comfortable taking. I had to stop taking ibuprofen several years ago, because I could feel it burn all the way through every loop and whorl of my digestive tract. What IS that stuff?
Jul 26, 2023·edited Jul 26, 2023Liked by CT Liotta
You’ll kick it! Also curious if you’ve met with and infectious disease practitioner? Sarcoidosis can be brought on by bacterium or fungi. Wondering if you brought an uninvited guest home from one of your trips?
I’ve been dealing with unexplained joint pain, fluid retention, and joint-adjacent tendon issues. It’s no fun but it’ll be figured out just like yours.
In 2020 and then 2022, I was in the hospital, each time for 5 days with some random autoimmune disorder, with joint pain and swelling... like Lupus, but not.
The specialists essentially said they don't know what caused it or whether it will eventually kill me....
It puts things into perspective, though . . . the whole idea of doing something in your mind's eye but barely being able to tie your shoes to do said thing.
This is scary. My wife and I (but mostly her) have been taking care of a family member with pretty severe early Parkinson's. It's been really scary. What's more, she had an auto-immune disease a dozen-ish years ago that she's still dealing with the effects of. There's so much to be afraid of. I hope you can find some pain remedy that 1) works and 2) you're comfortable taking. I had to stop taking ibuprofen several years ago, because I could feel it burn all the way through every loop and whorl of my digestive tract. What IS that stuff?
You’ll kick it! Also curious if you’ve met with and infectious disease practitioner? Sarcoidosis can be brought on by bacterium or fungi. Wondering if you brought an uninvited guest home from one of your trips?
I’ve been dealing with unexplained joint pain, fluid retention, and joint-adjacent tendon issues. It’s no fun but it’ll be figured out just like yours.
In the meantime, at the risk of sounding like a fool, it couldn’t hurt to read Marcus Aurelius.
I am thinking of you and pulling for you.
In 2020 and then 2022, I was in the hospital, each time for 5 days with some random autoimmune disorder, with joint pain and swelling... like Lupus, but not.
The specialists essentially said they don't know what caused it or whether it will eventually kill me....
It puts things into perspective, though . . . the whole idea of doing something in your mind's eye but barely being able to tie your shoes to do said thing.
Thinking about your predicament - any updates, my dude?